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I own the last Wauquiez Centurion 42  (hull#55).

Saturday, January 10, 2015

Thank God it's Friday! Or maybe not...

Friday marked day five of chemo and radiation.   I like to check things off and I was looking forward to checking one week of chemo DONE!  But Thursday had to happen first.
I finished chemo and radiation on Thursday and my buddy Pete was in town to visit.  He offered to drive me to and fro.  The treatment went without a hitch but I was having more than the normal amount of belching.  I didn't think much of it and after the treatment, Pete and I headed to check on Appa.  
We started the engine and the fumes were hurting my lungs, even the cold air was hurting them.  That was something new.  I was also quite nauseated.  That is not new.  Monday and Tuesday were hallmarked by extreme nausea.  It was handled well by the meds I was prescribed, but I hate taking medicines to counteract other meds.  No matter the Zofran did it's job on the nausea and I was OK.  Wednesday I even worked an 11 hour shift after radiation.
So Pete and buttoned up the boat and I went home to register for school.  After that we headed to Hales BrewPub for food.  Met David and Scott there and ate.  I had no appetite and ate one corner of my sandwich.  I was having heartburn really bad. 
Once I got home I laid on the couch and chilled out.  The burning and the pressure in my chest was intense.  I took some home remedy for heartburn and that quieted it down quite a bit.  By 3pm I was ready to take the kids to gymnastics.  Once at gymnastics, I felt fine except for occasionally heartburn and I popped a couple of those home heartburn pills and was OK.
We ate dinner at CYC and had some chicken sesame with soy sauce.  After I ate that, I felt the heartburn rises up again.  By the time I got home, it was pretty bad.
I googled Xeolda and heartburn and landed on this young woman's blog about her dealings with some sort of cancer that maybe started in her gallbladder but they weren't sure.  It was a good read and as I flipped through the blog pages I accidentally came to the last post of the blog.  A Memorial Post to the author by her heartbroken sister.  She fought so hard and that damn cancer was aggressive as hell. That broke me down some.  I hate reading about cancer.  HATE IT.  And here we are, you reading and me writing. 
Anyway, all friday morning I can't sleep.  Chest is burning and nausea is kinda messing with me.  Just miserable.  I finally fell asleep around 6am and woke at 730am.  Got up and the heartburn kicked in by the time I got downstairs.  This time is was serious.
This is actually my chest.  Flames are real.  
 It was unreal how painful that was.  Brought me right to my knees and then would let up.  Never had nothing like that.  Don't want it again.  The ride to radiation was hard but we made it.  I walked into the office and told them I was having heartburn and could I take something.  Dr Mehta took one look at me and sent me to the Swedish First Hill Emergency Department.  There I got an IV, 12 lead EKG, Chest X Ray and cardiac enzymes drawn.  When the heart gets damaged from either blunt trauma or lack of oxygen, it will release an enzyme called troponin.  They were looking for the enzyme.  I also got Pepcid in my IV but that didn't really help my pain.
Dr Gold visited me there and said it looks like I am the 1% of people that get coronary spasm from the Xeloda.  I was all like, No No No.  Not me.  I'm not the guy.  I love this med.  Noooooooooo.
So the deal is, if you get coronary spasm from taking Xeloda, you have to stop it.   Dr Gold says, "It isn't optimal."  Meaning I have to stop the one drug that pushes my chances of survival into a "Good" percentage.  So all is not lost he says and goes with "We will might start it again on Monday once they make sure that your heart is ok.  Monday.  Start with Monday."  Then he grabs me and says "It will be OK."  Or something like that.  I had a hard time staying focused.  Hell this guy could have been in the room asking me:
Yo Marcus!  You need a giraffe?
That was some stressful time there.
All results were normal except for the troponin.  It was 0.07.  Which really means nothing but with our family history of heart problems and the pain I was having, they admitted me so they could check another troponin in 3 hours, 6 hours and then in the morning.  My EKG was slightly different from the one I had on New Year's Eve at work but only slightly.  They started to work on getting me a bed.
Radiation got pushed back to 330pm and I went upstairs to my new private room.  I got settled in and they redrew my blood while up there.  Troponin comes back 0.18!  That isn't suppose to happen.  That is not on my list.  Not part of the plan.  The RN says that 0.2 is the number that would be troublesome and I say, "Well, it is next!"  God I was mad.  I can't get through ONE WEEK of chemo with radiation without some bullshit happening.  Here I am admitted to the hospital for a possible heart attack.  I was barely holding it together.
I went and had radiation which was fine.  Got back to my room and slept till they drew my blood at 8pm for my next troponin test.  Blood tucked into the tube and sent on it's way to lab.  I wait...and worry.  Pete is suppose to show up with Kalie's Deep Dish Pizza.  He brought along David, Chris, Jeremy.  Shortly after Shaun with her brood showed up.  Pizza got eaten and then we waited for the 915pm troponin results.
If this troponin was to be elevated, I would be officially having a "cardiac event".  Maybe not a heart attack but injury was definitely occurring.  This also meant that the test for heart attack would stop being so easy like a blood draw.  The next test for me would be an angiogram.  Basically they thread a tube from your radial artery in your wrist or femoral artery in your leg up to the tip of your heart.  Then they inject dye that X-rays can see into the blood stream going to heart.  This lights up the arteries feeding your heart oxygenated blood.  If one of these babies becomes blocked... 
HEART ATTACK!!!!!!!!!!!!!!!!!!!!!!

 They leave the x ray turned on and it is like a movie of your blood running through your heart.  Blockages are easily seen and the slightly clogged ones are also.  It is really cool.  Unless you are on the table.
Finally the RN walks in and starts getting medicines ready for me.  Oh Oh.  What's the trop?  I ask.   0.24.  I know how to kill a party!!!!  Everyone is silent.  Damnit.  The RN asks if I want an Ativan.  Uh, yes please!  Duh!
My buddy Chris spends the night and at 8am I have another blood draw.  I worry about this all night.  I can't take the chemo that might save me.  The proven chemo.  The one that the studies are based on.  Why in the name of all that is Holy is this happening?  I am one of a few Americans (generally speaking) that get this cancer under the age of 50.  THEN I get to be the 1% that can't take the very drug that can hopefully save me.  My God.  I turn my head on my pillow and before Ativan thankfully allows me drop off to sleep, I remember that I have to do an angiogram later because I am officially having a "cardiac event."  <sigh>
I wake up after a 3 hour nap and it is 7am.  I go out the the front desk and I hear my nurse talking to someone on the phone.  Jennifer.  She is talking with my wife.  I go back to bed and then the RN walks in.  The troponin from last night doesn't impress the doctor.  He is going to send me home immediately after the next troponin result as long as it is lower.  Blood gets drawn five minutes later.
My life has come down to this.  Waiting.  Waiting on test results.  And guess what?  For the next 60 months, I get to wait for the test result that tells me if cancer is back.  And after 5 years?  I get to do 10 more.
Thirty minutes later, Bethany the RN sprints in the door (uh oh) and I ask her if the results are back,  the cardiologist is right behind here.  0.35!  It is explained that I am having a ST elevation MI.  ECG changes with small ST elevations along with a 0.35 troponin mean I am having a heart attack.   Ambulance is here in 5 minutes.  I got another IV placed in my arm and then off I go to the cardiac hospital of Swedish Medical Center.  Cherry Hill!
Yes!  I am texting!
We do lights and sirens to the hospital.  Rushed into the cath lab and they start prepping me for my cardiac cath.  Shaved my wrist because they can use the radial artery and they shaved my groin.  Both sides.  In case the wrist didn't work.  I have a mohawk down there.  No kidding.
If I have blockage in my heart they put a stent in it to open it back up.  Most stents require the patient to be on blood thinners to help the stent do it's job.  You have to take these for 6 months.  So if I have to have a stent, I have to delay getting the malignant, treacherous, deadly lump of steaming evil out of me by three to four months.  That is not optimal.  The treasonous piece of garbage will have 4 more months to grow and spread that crap everywhere.
On the table they manage to thread the catheter up my radial artery up my arm and all the way to my heart.  Xrays are burning through my body like crazy.  Let's see now, I have had in the past 2 days, 2 chest xrays, the cardiac xray series, and every 5 out of 7 days I get burned with a giant linear radiation gun.  Sounds about right.
Long story longer.  Clear.  My arteries in my heart are all 100% wide open for business.  My blood flows better than Seattle's traffic.  Wait...is that a good comparison?
When I get the news, I am happy but if all the arteries are open then what is bumping the troponin.  The doctors then order an Echocardiogram.  This test can see how well your heart pumps the blood through the heart and check for fluid around the heart.  BAM!  Everything is 100% open and running like a clock and no water around the heart.  NICE!
So the differential diagnosis are pericarditis and coronary artery spasm.  Maybe a couple more but I cannot remember.
I might not know what is going on exactly but I know this.  I am going to see Dr Gold Monday and talk about the Xeloda.  I need to be on that drug.  Physically and mentally.  If I can't take it, I will feel defeated.  Defeated by my own body.  I fell like yelling at my body...

 Unfortunately Dr Gold firmly believes that this is Spasm Syndrome.  I kinda feel that way also.
The way forward will be trying a calcium channel blocker like Cardizem or Amlodipine.  These reduce the chance of coronary spasm by relaxing heart muscles.  It also drops your heart rate.  Have to be careful with this medicine though.  Then I will start low dose Xeloda (not optimal, I need 3500mg every day) and if I start have chest pain...no Xeloda.  
Been harding writing this blog.  All of them have.  I get so angry.  Most of the time I'm writing these, Sam is playing around me in her magic world she can go to, Ben is around in some shape, wife off doing something but close by.  Family is near me and I feel that being taken away, piece by piece.  I can stand at the kid's rooms and listen to them breathing while they sleep for hours.  
I know I can't dwell on it but how can I defeat something when I don't have the right tools?  Sub-optimally I guess.  Great.  Just fucking great.
Monday.  One day at a time.


  1. Jesus fucking Christ. I'm angry too. I'm angry right there with you. Wish I could give each of you a giant hug. We're following you. We're thinking of you. We love you guys.

  2. Man, that's like fending off the Genghis Khan hordes coming from several directions at once. We're bringing up reinforcements, if supportive thoughts help. I really admire that you can write so profoundly about such distressing stuff, and be so effective at touching us. Keep the traffic running and I'm with you at being pissed.

  3. It's Monday and I am saying a little prayer for some good news for you! Hang in there, one day at a time (so much easier said than done).
    Iam angry for you too!